Mary's Story | Chiari Malformation | Choose UPMC from arnold chiari Watch Video

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This Video is password protected, you can email me for the password at missverstand@gmail.comnnAt our 20 weeks ultrasound December 5th 2013 we found out we were pregnant of a boy with Spina Bifida L4/5 S1 , Arnold Chiari Malformation Type I, slightly increased ventricels in the brain, 1 clubbed foot and 1 heel foot (flat foot). From our Hospital in Utrecht (Netherlands) we went to UZ Leuven in Belgium to get our fetal surgery. Belgium Television was working on a program called Topdokters and ask
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Writing for Ryan is a community-funded documentary project about seven families whose lives have been severely affected by Arnold Chiari Malformation, a misunderstood brain disorder that leaves devastation in its wake.The footage you are about to view is the story of Ryan McGee, a young man who suffered unimaginable trauma at the hands of those he trusted to heal him.It is our hope that this film brings about the education, awareness and change our community so desperately needs.nnRyan McGee
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