_a-life-in-the-shadow-erythropoietic-protoporphyria-epp.jpg "A life in the shadow - Erythropoietic Protoporphyria (EPP) from sane line com Video Screenshot Preview")
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⏲ Duration: 3 min 46 sec
✓ Published: 15-Jul-2010
✓ Published: 15-Jul-2010
Description:
Continuing and persistent burning pain, isolation and a lack of understanding from peers has a long term impact on patients diagnosed with erythropoietic protoporphyria (EPP). For Lyndal, 24, the disease has led to severe depression.nnEPP can be defined as absolute light intolerance. Exposure of Lyndal's skin to sunlight results in severe burning pain, swelling and scarring caused by a phototoxic reaction. Throughout her life, Lyndal has endured countless painful reactions to sunlight.nnWith no
Continuing and persistent burning pain, isolation and a lack of understanding from peers has a long term impact on patients diagnosed with erythropoietic protoporphyria (EPP). For Lyndal, 24, the disease has led to severe depression.nnEPP can be defined as absolute light intolerance. Exposure of Lyndal's skin to sunlight results in severe burning pain, swelling and scarring caused by a phototoxic reaction. Throughout her life, Lyndal has endured countless painful reactions to sunlight.nnWith no
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